We have felt our father’s care through you these last days. Your expressions of his love have made this path much less rocky and fearful. Thank you.
We met with our Maternal-Fetal Medicine Doctor this afternoon “just to talk.” He patiently answered all our questions from ‘what’s your sense?’ to ‘what’s the worst case scenario.’ He also added to this list several items that he hadn’t mentioned before of “anomalies,” “abnormalities” or “defects.” None of those words do I really like, but that just seems par for this course. From last Friday’s ultrasound they have seen issues related to the brain, the heart, the kidneys, the stomach, the lips, and the little finger. The Dr is fairly confident that all these things taken together indicate a chromosome disorder, likely Trisomy 13 or 18 - both of which are almost certainly fatal, either pre-term or within a year of delivery.
That is not a pretty picture. We have spent many hours since Friday wandering around the valley of the “worst case scenario” and – though that it is an excruciatingly painful thought – we realize that all of this child’s days are numbered, just like Anna Catherine’s and Colin’s. We are just more aware of this reality with our new little son.
We have decided to fore go any further testing at this point. We are planning on watching our son’s development with ultrasound (once a month) and seeing what happens. Come what may, all we know is that we have right now to love our son and we plan on doing that as long as the Lord gives us.
Thank you for your ongoing prayers for us and for our son. We are trusting his providence and good fatherly hand. He is strong and he is good. And that is enough.
grant and sara
